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After a dementia diagnosis: what to do in the first months

The diagnosis starts a long road. Paperwork, safety and support come first, and moving usually comes later.

Quick answer

Put legal and financial authority in place while the person can still take part: a durable power of attorney, a health care power of attorney, an updated will, and a list of accounts, passwords and insurance policies.

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What should a family do first after a dementia diagnosis?

Put legal and financial authority in place while the person can still take part: a durable power of attorney, a health care power of attorney, an updated will, and a list of accounts, passwords and insurance policies.

An elder law attorney can prepare the documents and explain how Medicaid planning works if long-term care may be needed. Ask the diagnosing doctor what stage the disease appears to be and what changes to watch for, and whether driving should stop now.

How do we keep a parent with dementia safe at home?

Remove or lock away car keys, firearms and dangerous medications, disable or monitor the stove, add door alarms if wandering starts, and set up a daily routine with check-ins; wandering is the most common reason home stops being safe.

Adult day care offers structure for the person and a break for the caregiver. The three counties have 10 DPH-licensed adult day care centers, licensed for 658 participants in all. Ask each center how it handles wandering and toileting before enrolling.

When does a parent with dementia need memory care?

Usually when exit-seeking or getting lost begins, when the person no longer recognizes danger, or when a family caregiver can no longer cover nights; South Carolina memory care means a building DPH flags for an Alzheimer's special care unit.

On DPH's licensing data (as of November 6, 2026), 21 of the 56 senior-serving CRCFs in Charleston, Berkeley and Dorchester counties carry an Alzheimer's special care unit flag, 4 more report Alzheimer's care without a unit, and 1 of the 19 licensed nursing homes carry an Alzheimer's flag. Ask every program for the written disclosure the Alzheimer's Special Care Disclosure Act requires, and ask how many staff are on the secured unit overnight. Touring before a crisis lets the family compare calmly and join a waiting list if needed.

Where can caregivers get support around Charleston?

The Trident Area Agency on Aging's Family Caregiver Support Program (843-554-2275) offers information, respite help and support for people caring for a relative with dementia, and the Alzheimer's Association runs a free 24-hour helpline at 1-800-272-3900.

Caregiver exhaustion is the most common reason a family moves a parent sooner than planned. Use respite before you need it, not after.

Side by side

In the first months, doIn the first months, do not
LegalSign powers of attorney while the person can take partWait until capacity is in doubt
SafetyAddress driving, stove and wandering risksAssume problems will announce themselves
CareTry adult day care and in-home helpMove in a rush unless safety demands it
Memory careTour flagged units and read disclosuresRely on the phrase memory care in an ad

Sources: S.C. Code Regs. 60-84, DPH Healthcare Quality, SCDHHS bulletins and charts, CareScout, CMS and VA rate tables, as cited in each answer. See our editorial standards.

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